When insurance denies Duchenne muscular dystrophy treatment, we help you appeal

NS Support has partnered with Claimable to make it easier to appeal an insurance denial.
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Appeal in minutes. Faster than waiting on hold.

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Built to make your case. Your story, backed by clinical evidence and policy.

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At no cost to you.* We fax and mail your appeal and track delivery.

Start your appeal

*Eligibility restrictions apply. See Terms and Conditions below.

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Claimable can help you appeal your plan's decision

You tell us what happened. We find the evidence to back it.

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Has treatment been denied?
We can help you share your or your child’s history and their doctor’s reasons, to help minimize delays or gaps in coverage.
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Told you don’t meet the criteria?
Plans may set requirements before they approve coverage. We can help you respond with the appropriate records and your plan’s own policy.
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Plan says it’s “experimental”?
Plans sometimes use this label for newer treatments. Our appeals answer it with clinical studies, care guidelines and your plan's own rules.
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Denied after previously approved treatment?
At renewal, plans often ask for proof you're stable, or for updated tests. We can help you show how you've been doing to make the case for ongoing coverage.

How it works

You answer questions. We build and submit your appeal.

Get started
01
Accept your invite – or start from here.
If NS Support referred you, accept your email or text invite to get started. Otherwise, click “start your appeal” to begin.
02
Answer simple questions.
We’ll ask you questions about the denial and the impact of Duchenne.
03
You finalize and submit your appeal.
We build an evidence-based appeal with clinical evidence and policy arguments. You review, approve, and submit the patient appeal.
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Delivered, tracked, and supported.
Your insurer will update you with a decision. Claimable and NS Support are here to support you.

What’s in your patient appeal?

Claimable builds your story and history into a customized appeal backed by clinical evidence and policy insights. Each appeal delivers evidence-backed arguments to address the specific reason for the denial.

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I was diagnosed with Duchenne as a child, and I'm now 26. I use a power wheelchair and rely on help with some everyday tasks. I work part time from home, and my brother, who I live with, helps with my care. Planning each day around my energy and my care schedule is how I keep working and stay close to friends and family.

This treatment is part of the plan my care team built for me. A gap in coverage is something I worry about, because it would interrupt the care plan my team and I rely on. I ask that you consider what this decision means for my daily life.

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Genetic testing confirmed my Duchenne diagnosis, and my neuromuscular specialist prescribed this treatment as part of my ongoing care. Expert care considerations for Duchenne, developed by clinicians convened by the CDC, call for coordinated care from a team of specialists. My care follows that model, with regular visits to my care team.

My specialist's notes describe my current care and why this treatment is part of my plan. My most recent clinic records and test results are enclosed, along with a letter from my specialist. I ask that you review them alongside the published care guidelines and reconsider this decision.

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The denial letter does not say which part of the policy was not met. I am requesting a copy of the specific criteria used to decide this claim, and a review by a physician with training in neuromuscular disease who was not involved in the original decision.

I ask that the plan apply its own policy as written. My enclosed records show how I meet each requirement, and my specialist's letter explains why it was prescribed for me. Because a delay could seriously affect my health, I am also requesting an expedited review and a decision within the time the law requires.

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5.0
“From start to finish, the process was straightforward, well-organized, and thoughtfully designed...but what impressed me most was the personal attention.”
Anne J.

Before you start

Quick answers to your most important appeal questions
Isn’t my doctor appealing?
You have a legal right to appeal on your own. NS Support works with your doctor's office so only one appeal goes in at a time.
What does Claimable cost?
Through the NS Support Appeal Program, appealing with Claimable costs nothing for eligible patients. Start an appeal to check your eligibility.
Is my information safe?
Claimable is HIPAA-compliant and SOC 2 Type II certified, the gold standard in security. You always have the final say over what goes in your appeal.
INTERACTIVE DEMO

From start to send in minutes

How to prepare, create, and submit your appeal with Claimable.

Create your account

You’ll land on the Claimable website, where you create an account. Choose a strong and memorable password.

Answer simple questions

Tell us about your experience and history. This helps us build a strong, effective appeal.

Generate your appeal

In just a few minutes, the Claimable AI will compile clinical evidence and your plan’s policy to build your personalized appeal.

Review your appeal

Before you submit, review your appeal letter to make sure everything looks good. If you need edits, you can request them here.

Upload documents

Strengthen your appeal by adding supporting documents such as medical records, a genetic test report or doctor’s notes.

Tip: Gather everything beforehand so it’s quick and easy! If NS Support referred you, some may already be added.

Finalize and submit

When you’re ready to submit, click “Send my appeal.”

We fax and mail it for you and track delivery.

Report & support

Your insurer will update you with a decision.
Report it in your account, and if you need help with next steps, NS Support is here for you.

Let’s start your appeal

Free for eligible patients. Appeals have deadlines – start yours today.
Get started

Frequently asked questions

You have questions, we have answers.

Don't see your question? Contact us.

Yes, you have the right to appeal. Your rights usually include a timely review with deadlines your plan must follow, a full and fair review of everything you send, and more than one level of appeal. Through the NS Support Appeal Program, Claimable helps patients and caregivers build and send their own appeal, at no cost to eligible patients. Patients with commercial or government insurance may be eligible; see the program terms for details. If you work with NS Support, your Patient Engagement Liaison can help you get started.

A denial is not a final decision — it's the start of a process. You have the legal right to appeal.

Here's what to do:

  1. Read your denial letter carefully. It will include the specific reason coverage was denied and instructions for how to appeal. Keep this letter — you'll need it. If you don't have it, NS Support may be able to help you get a copy.
  2. Note the deadline. Your denial letter will include a deadline for filing an appeal. Mark it and don't miss it.
  3. Talk to NS Support and your doctor. Let them know about the denial. Your Patient Engagement Liaison and the doctor's office will work out the best next step.
  4. If you'd like to file your own appeal, Claimable can help. Through the NS Support Appeal Program, you can create and submit an evidence-based patient appeal at no cost to eligible patients. You'll answer some questions about what happened, and Claimable builds a personalized appeal with the clinical evidence and policy arguments that support your case. You review it before it's sent.

It depends on the type of appeal, your plan and your situation, but here's what to expect:

  • Urgent/expedited appeals: If your appeal is for a treatment you're currently receiving, or delay will cause imminent harm, it can be classified as urgent. Many plans must respond to urgent appeals within 72 hours. Through this program, Claimable will help you flag your appeal as urgent when appropriate.
  • Standard internal appeals: Many plans must respond within 30 days.
  • After an internal appeal: If your appeal is denied, you may be able to go further, including to an independent review. NS Support will talk through next steps with you.

Your part takes about 30 minutes. From there, the timeline depends on your plan's response.

Some reasons may include:

  • The treatment isn't "medically necessary."
  • The patient doesn't meet the plan's coverage criteria.
  • The treatment is "experimental" or "investigational."
  • A renewal was denied.
  • A different treatment must be tried first.

Your appeal answers the specific reason on your denial letter.

Step therapy means the plan wants you to try a different treatment first. You can appeal a step therapy requirement, and in many states the law allows exceptions.

If your treatment is one NS Support supports and your plan denied coverage, the program may be able to help, whether or not you already work with NS Support. Not sure? Call NS Support at 1-833-677-8778, Monday–Friday, 8 AM–8 PM ET.

Through the NS Support Appeal Program, there is no cost to eligible patients for using Claimable to create and submit your appeal. Check your eligibility for a no-cost appeal by creating an account and getting started on the Claimable platform.

You'll have access to Claimable's full appeal platform — including personalized appeal generation, evidence-based arguments, and submission via fax and mail — at no charge. See program terms for full details.

To create your appeal, you'll need:

  • Your denial letter — this tells us exactly why coverage was denied, which insurer denied it, and what your appeal deadlines are. If you don't have a copy, you may find it in your insurer's online portal or app, or NS Support may be able to help.
  • Your insurance card — you can take a photo of the front and back.
  • Basic information about your health — Claimable will walk you through guided questions about the diagnosis, treatment history, and how the denial has affected you and your family. Specific, everyday examples help tell your story. You don't need to prepare anything in advance.

If you have a genetic test report, recent clinic results or a letter of medical necessity, you can upload those too, but they're not required to get started. If NS Support referred you, some may already be added.

You can complete the appeal yourself, or a caregiver can help or complete it for you. It takes about 30 minutes.

Yes. Each has different strengths. A provider appeal is usually built on clinical justification alone. A patient appeal can draw on your story, the clinical evidence, and the legal protections that apply to you as a plan member, including in most plans the right to an independent external review. Only one appeal should go in at a time, so NS Support works with your doctor's office on which to file. If your doctor's appeal is denied, you may be able to file the next appeal yourself.

No one can promise an outcome, and every case is different. The strongest appeals combine your story, the clinical evidence, and the specific laws and plan policies that apply to your denial. Claimable builds each appeal around all three. It can take more than one try, and if your first appeal is denied, NS Support will talk through next steps with you.

Yes. Claimable is HIPAA compliant and SOC 2 Type II certified, which means your health information is handled with the security standards used to protect sensitive data. NS Support shares information with Claimable only under the authorization you gave it. You review and approve your appeal before anything is submitted.

Your plan sends its decision to you. Please report it in your Claimable account so NS Support knows too.

  • If it's approved, let your doctor's office, specialty pharmacy and NS Support know.
  • If it's denied, NS Support will reach out about next steps, which may include a second-level appeal.

You can always call NS Support at 1-833-677-8778, Monday–Friday, 8 AM–8 PM ET.

Through sponsorship by NS Pharma, Inc., Claimable provides this platform to support patient appeals at no cost (the "Sponsored Program") for eligible patients. Patients must reside in the U.S., have a valid prescription from a licensed U.S. healthcare professional for a treatment supported by NS Support, and have received a denial from their health plan for that treatment. The Sponsored Program provides eligible patients with appeals support for up to two cases per patient per calendar year (including multiple appeal levels for the same denial). Patients are responsible for the accuracy, completeness, and timeliness of any submissions associated with their treatment and must review the full appeal before submission. The program sponsor does not control the Claimable platform and cannot guarantee the accuracy or suitability of any appeal generated. Approval of an appeal generated as part of the Sponsored Program is not guaranteed. No medical or treatment advice, or medical assessment of patients, is provided as part of the Sponsored Program. Patients should talk to their doctors about any questions related to their condition or treatment.

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